Care Team /
To provide direct consultation and support services on behalf of Synapticure to the neurodegenerative community across the US. You will be in charge of providing care coordination and support services to patients, caregivers and loved ones affected by neurodegenerative disease, such as ALS, Parkinson’s and Huntington’s, and building relationships with partners to drive real, measurable change in how people affected by neurodegenerative diseases are treated.
Synapticure is a for-profit entity that aims to give all patients living with neurodegenerative disease access to the best care while fueling the advancement of personalized treatments. We do so by creating a guided journey for each patient, their caregiver and family that educates and empowers while facilitating access to critical tests and leading experts. De-identified data is then used to both inform personalized treatments for patients today and to speed the development of new targeted therapies.
Synapticure launched in early 2022, initially serving individuals living with ALS and is now expanding to serve additional neurodegenerative diseases. To serve thousands of individuals and their families per year, Synapticure requires effective, knowledgeable and compassionate team members to execute on a new and exciting endeavor in the ALS community and beyond.
You are passionate about the power of targeted therapies and involving patient voices in these experiences and outcomes. You thrive on direct communication with patients, caregivers and their loved ones and have a passion for working with vulnerable populations. You are thoughtful, organized, curious and empathetic; kind and sincere. You love the ability to impact someone’s life and to learn from their experiences to continually improve. You are eager to be involved in a program from inception and are comfortable with growth, change and evolution to meet the needs of the neurodegenerative community. You have a strong knowledge and understanding of current trends in neurodegenerative disease, terminal illnesses, targeted therapies and clinical trials, patient navigation and/or telehealth fields.
The Care Coordinator will be responsible for supporting members of the neurodegenerative community and our partners through phone, email, in person, web portals, chat and texting communications. In collaboration with and under the guidance of the Director of Care Coordination and other team members, you will execute on the Synapticure Care Coordination Program, ensuring the needs of the ALS community are met.
The Care Coordinator is a direct support to people affected by ALS and additional neurodegenerative diseases. This person oversees the relationship, enrollment, documentation and care experience of ALS patients through the Synapticure program.
- Bachelor'sDegree in a related field
- Bilingual English/Spanish
- 2+ years' experience in direct case or care management.
- Experience with insurance and billing/coding.
- Experience handling and reviewing medical records.
- Experience with clinical trials.
- Experience in ALS, Parkinson's Disease, neurodegenerative, chronic or rare disease space.
- Experience in a startup or organization that has experienced rapid growth and change.
- Exceptional communication skills.
This position is remote and work would be based in your home. The necessary technology would be provided to work out of your home. Travel to Chicago, IL where headquarters are and/or other meetings may be expected.